Chuck and Nicole’s journey began in 2016 with a whirlwind romance, meeting on Tinder and swiftly progressing to marriage and kids.

In June of 2023, Chuck began experiencing shaking in his hands, but didn’t think much of it. They continued to enjoy their summer and decided to add to their growing family, becoming pregnant with their third child in September 2023.

Chuck’s health began to decline and by November he was noticing significant changes, marked by unexplained symptoms and alarming weight loss. Initially attributed to potential liver issues, further evaluation led to a devastating diagnosis. At the age of 38, Chuck was officially diagnosed in February 2024 with limb-onset, sporadic ALS. Amidst the emotional turmoil, they welcomed an au pair named Wendy and their third child, Jenna, into their family.

On Thursday, April 17th, 2025, Chuck passed away at Massachusetts General Hospital after suffering a medical emergency at home that Monday night. Chuck had chosen to be an organ donor and so his kidneys were donated to those in need while other organs were donated to ALS research in hopes of helping others.

Throughout the 14 months after his diagnosis, Chuck maintained his sense of humor and continued to keep us laughing with his quick one-liners. He also continued to engage with the kids while using his new adaptive equipment. Chuck’s legacy lives on through his wife Nicole and their 3 children, Charlie, Alana, and Jenna whose names pay tribute to Chuck’s initials CAJ.