The Johnson Family and ALS Advocacy
Press
News Articles and Other Media
Throughout this journey, Chuck and Nicole and the rest of their family have done all they can to get the word out on their situation and bring awareness to ALS and how it impacts those living with it.
Nicole and her family will continue to help those who are currently going through or have also been on this journey by fighting for continued awareness and research for ALS.
For Press Opportunities contact Nicole by emailing makewayforchucklings@gmail.com
NESN - MLB Lou Gehrig's Day at Fenway
Nicole, along with Nancy Frates, had the opportunity to speak with Tom Caron on NESN on Lou Gehrig’s day on June 2nd, 2025 at Fenway Park. Nicole was amongst many others touched by ALS who were honored on the field before the game.
WBZ-TV News Segment
Nicole teamed up with Nancy Frates and WBZ-TV’s Louisa Moller during ALS Awareness month.
Bourque Family Foundation Captain's Ball 2025
Snowcap Video partnered with FMP Productions and the Bourque Family Foundation to create a powerful film for the 2025 Captain’s Ball, supporting ALS research. The video weaves together interviews with a doctor and nurse practitioner from the Healey Center alongside Nicole Johnson’s deeply moving story of her husband’s ALS diagnosis on Valentine’s Day 2024 and his passing just 14 months later, leaving behind their three young children. The piece highlights both the urgent need for continued research and the strength of families impacted by ALS.
Eagle Tribune Newspaper Articles
The week before his passing in 2025, Chuck and Nicole sat down with a journalist from their local newspaper to talk about their journey with ALS.
Nicole then spoke again with the Eagle Tribune 1 year after Chuck’s passing.
