Learn more
ALS Resources
01
Pete Frates Foundation
The Pete Frates Foundation was founded by the family of Pete Frates, who was a prominent advocate for those with ALS and pioneered the "Ice Bucket Challenge." It is a 501c3 non-profit with the mission to assist progressed ALS patients and their families with the overwhelming cost of home health care. As of 2026, Nicole is an Advisory Board Member, working closely with the Pete Frates Foundation to help and support other ALS families.
02
Sean M. Healey and AMG Center for ALS
A group of researchers, clinicians, project managers and information technologists at Massachusetts General Hospital, working with collaborators around the globe to find novel therapies for people with ALS. They are passionately devoted to providing innovative care that combines new tools, such as telemedicine, with age-old solutions, such as house calls, to provide the best treatments available to help people with ALS today.
03
CompassionateCare ALS(CCALS)
CCALS, based in Falmouth, MA is a non-profit organization that provides various services and resources, including equipment, educational workshops, Medicare/Medicaid assistance, guidance and awareness in living with ALS, caregiving, and end-of-life issues.